This, I Believe – Poetry about life with EDS by Caitlyn Keller

I’m not often moved by youtube videos, but this one is too wonderful not to share. It tells my story, it tells the stories of people I khow who suffer from Ehlers-Danlos Syndrome. Does it tell your story too? I wish I could maintain this positive perspective more often about my situation, but if I can for even a little while I consider that a win. I am still struggling very much with acceptance. Videos like these help me to accept that I am a mutant.

How did this video make YOU feel? Comments welcome. Am I the only one who is nearly in tears every time I hear it? I want to hear drummers in the bends of my knees. Would we be better off if everyone was a little bit broken?

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2 thoughts on “This, I Believe – Poetry about life with EDS by Caitlyn Keller

  1. Thank you so much. I really had no idea that this video would even be viewed at all outside of a requirement for a class project. It meant so much to me. I have no words to describe the way I feel hearing that even in such a small way, I may have brightened someone’s day. Thank you again for sharing it. Much love my fellow spoonie.

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