Ehlers Danlos Syndrome International Registry

When I discovered I have Ehlers Danlos Syndrome, I felt very alone. After much discussion, and looking at resources that were already available, I realized that finding support you can access in person isn’t easy. I’m always needing suggestions for local resources, but I am fortunate enough to live in one of the few areas of the US that has a long-standing EDS support group meeting once per month.

If you have EDS and you’re trying to find someone to talk to who REALLY understands, check out the Ehlers Danlos Syndrome International Registry.  There are so many zebras there! Maybe you’ll find a local friend.

Advertisements

4 thoughts on “Ehlers Danlos Syndrome International Registry

  1. Pingback: What is Ehlers-Danlos Syndrome? | Ehlers-Danlos Links

  2. Pingback: Ehlers Danlos Syndrome International Registry | EDS Info (Ehlers-Danlos Syndrome)

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s